..TriState Support Network for Families with Bipolar Children
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INFORMATION FOR PARENTS

EXCITING NEWS FROM THE
JUVENILE BIPOLAR RESEARCH FOUNDATION
www.jbrf.org

THE CHILD BIPOLAR QUESTIONNAIRE (CBQ)
The Juvenile Bipolar Research Foundation is pleased to offer parents, physicians, and other mental health professionals a concise screening inventory developed by JBRF director of research, Demitri Papolos, M.D. The Child Bipolar Questionnaire (CBQ) is a reliable and sensitive indicator used in current JBRF-sponsored studies. New service for parents: In response to many requests from parents and clinicians, the JBRF has sponsored the development of programming for the automatic scoring of the Child Bipolar Questionnaire and its companion interview, the Jeannie and Jeffrey Illustrated Interview for Children. Parents and clinicians may create an account with JBRF and purchase this service using PayPal. The result is a printed scoresheet for each questionnaire, listing important scores and their indications, as well as dimensions of impairment indicated by item responses. Parents, please note: It is the intention of JBRF to provide this screening instrument as an organizational aid in the assessment process. Once completed by a parent, the CBQ should be submitted to the professional diagnosing his or her child. Only an experienced diagnostician with a full understanding of the family history, as well as the symptoms and behaviors that the child exhibits, is qualified to make a diagnosis of bipolar disorder. In addition to the CBQ, information on the development and scoring of the CBQ, as well as Research Diagnostic Criteria for the Core Phenotype, developed from JBRF-sponsored clinical studies, are available in PDF form. Spanish, French, Polish, and Portuguese versions of the CBQ are available here also.

JEANNIE & JEFFREY ILLUSTRATED
INTERVIEW FOR CHILDREN
The Juvenile Bipolar Research Foundation is pleased to offer parents and treating professionals an illustrated child-report version of the Child Bipolar Questionnaire (CBQ). The interview, called The Jeannie and Jeffrey Illustrated Interview for Children, was developed by JBRF director of research, Demitri Papolos, M.D. This screening instrument was developed for use with children under 12 years old. It takes approximately 15 minutes to answer the questions. New service for parents: In response to many requests from parents and clinicians, the JBRF has sponsored the development of programming for the automatic scoring of the Child Bipolar Questionnaire and the Jeannie and Jeffrey Illustrated Interview for Children. Parents and clinicians may create an account with JBRF and purchase this service using PayPal. The result is a printed scoresheet for each questionnaire, listing important scores and their indications, as well as dimensions of impairment indicated by item responses. Parents, please note: Once completed, the interviews and scoresheets should be submitted to the professional evaluating and/or treating the child. Only an experienced diagnostician with a full understanding of the family history, as well as the symptoms and behaviors that the child exhibits, is qualified to make a diagnosis of bipolar disorder. Children rarely have words to describe what they are feeling so powerfully inside. The Jeannie and Jeffrey Interview provides the psychiatrist, therapist, and parent insight into a child's internal world, so that the child feels less isolated and alone. This allows medical and therapeutic interventions to be tailored to each child's concerns and subjective feelings, as well as to his or her behaviors.

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CONNECTICUT CHAPTER

The Connecticut Chapter of the TriState Support Network for Families with Bipolar Children hosted a workshop, "Bipolar Disorder and Development," on Saturday, April 29th, 2006 that featured Dr. Gianni Faedda as guest presenter. The meeting was held at the University of Connecticut campus at Stamford. Dr. Faedda, an internationally known psychiatrist, clinician, and psychopharmacologist, spoke of the interaction between the development of the nervous system and bipolar disorder and he answered questions from the audience after his presentation.

Lolli Ross, the facilitator of the Connecticut chapter, personally welcomed over 100 parents, educators, and clinicians who attended the meeting. Lolli spoke for all of the attendees in thanking Dr. Faedda for a wonderful presentation that offered valued information that was presented in a scientific yet comprehensive manner. The Question and Answer portion of Dr. Faedda's workshop gave parents and clinicians the opportunity to ask specific questions concerning early onset bipolar disorder. Dr. Faedda graciously stated that he welcomed the chance to hear of the experiences these parents encounter in raising their bipolar children.

Dr. Faedda understands the dismay that many parents feel when he stated that when diagnosing early onset bipolar disorder, "children are not little adults." Dr. Faedda believes that the current version of the DSM IV needs to be revised to reflect childhood onset bipolar disorder, symptoms of which differ than those of adult bipolar disorder. Dr. Faedda, is the Director of the Lucio Bini Mood Disorders Center in New York City and he continues to conduct research in the United States and Italy. The Mood Center's website is www.moodcenter.org


The TriState Support Network for Families with Bipolar Children continues to recognize the need for in-person support systems for parents and caregivers of children and adolescents with emotional and psychiatric issues and is pleased to announce the formation of a new "Westchester" chapter. Support meetings will be held at the Julia Dyckman Andrus Children's Center in Yonkers, New York. Parents of day and residential students at Andrus are welcome to attend the monthly support meetings, as are parents who are using the services of the Center for Preventive Psychiatry, a new partner of the Andrus community. In addition, the TriState Support Network for Families with Bipolar Children invites parents and caregivers from the community who are raising children suffering from mental illness to attend meetings. For additional information, please contact Vera Swinton at nikitammon@aol.com.



Educating and Nurturing the Bipolar Child - DVD

The Juvenile Bipolar Research Foundation recently presented a conference at which Janice Papolos was a keynote speaker. Her lecture, entitled Educating and Nurturing the Bipolar Child, was an incredibly informative and compassionate look at what a student with bipolar disorder faces minute-to-minute throughout the school day. As she spoke, Janice Papolos revealed the often unrecognized, and insidious factors that severely impact the children in the academic environment, causing them such frustration and such a sense of failure. These include:
  • Executive function deficits
  • Severe anxiety
  • Poor working memory
  • Difficulty with the concept of time
  • Difficulty with tasks requiring sequencing
  • Disorders of written expression
  • Reduced alertness in the morning
    (sleep inertia)
In less than an hour, Janice Papolos managed to be not only highly informative, but humorous, and extremely moving. She helped the audience experience the school day through the eyes of the struggling child, and gave teachers and parents easy-to-implement strategies and tools that make learning less stressful and more fulfilling. JBRF made a DVD of this live presentation, and all profits will go directly to supporting JBRF research projects. To order a copy of Educating and Nurturing the Bipolar Child, please click here for a printer friendly order form for fax or mail. For additional information about the Juvenile Bipolar Research Foundation please contact www.jbrf.org.

TriState Support Network for Families with Bipolar Children
Lower Hudson Valley Chapter/ Westchester Chapter/ Connecticut Chapters
2003